Speaker Type: Protect and Nurture: Developmental Care for Neonatal Neuroprotection in the NICU Lecture Pack 2024
Country: Ireland
Biography:
Mandy is a parent of a preterm infant, the founder of the collaborative multi-stakeholder, multi-disciplinary platform, The Irish Neonatal Health Alliance (www.inha.ie) and a EUPATI Fellow.
She specialises in the areas of Advocacy, Education and Research. Her achievements in the field include collaborating on several neonatal and paediatric health system reviews and clinical audits, reviewing obstetric, neonatal and bereavement clinical guidelines, developing and delivering curricula and continued education for medical, nursing, allied health professional and patient expert students, mentoring PhD students, serving on the advisory board of the PPI Ignite Network, the European Foundation For The Care Of Newborn Infants and the NIDCAP Federation International Board and working as patient collaborator and embedded patient researcher on over 70 national and international research studies.
Mandy is a chair committee member of group that developed the European Standards of Care For Newborn health, is a public reviewer for the Irish Health Research Board and the British Medical Journal Open Pediatrics, is a member of the National Office of Research Ethics Clinical Trials Committee, works with the National Clinical Trials Office Stakeholder and Management Committee, the EMA and the Health Products Regulatory Authority of Ireland and has published papers in several journals including the British Medical Journal, The Lancet, The Journal of Obstetrics and Gynaecology and Trials.
Preterm birth disrupts the biologically expected experiences of the newborn infant and flips the paradigm of parenthood on its axis. Survival is no longer accepted as the end goal and the focus has firmly shifted towards ensuring the health, growth and neurodevelopment of infants born preterm. Neonatal care delivered through the lens of individualized developmentally supportive care is now accepted as the gold standard for optimizing outcomes.
Does preterm birth affect the developmental origins of health and disease? Can the morbidities associated with preterm birth contribute to deficits in the quality of life once these infants reach adulthood? We will explore a case study of an adult born preterm to reflect upon this topic and address the question "Is developmental care a necessity or a luxury?
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